Links
European Organisation for Rare Diseases
European Platform for Patients' Organisations, Science and Industry
Fabry Support and Information Group
Genetic and Rare Disorders Association
Irish Platform for Patients' Organisations, Science and Industry
Irish Society for Mucopolysaccharide Diseases
Medical Research Charities Group
National Centre for Inherited Metabolic Disorders
National Institute of Health Office for Rare Diseases Research
UK Society for Mucopolysaccharide Diseases